Leading up to Lynch Syndrome Awareness Day

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🚨 1 in 279 people have Lynch syndrome. I'm one of them.

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Most people have never heard of it. That's exactly why I'm talking about it. Lynch syndrome significantly raises the risk of colorectal, endometrial, ovarian, and other cancers and 95% of people who have it don't know yet.

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March 22 is Lynch Syndrome Awareness Day. Please share this. You might just reach someone who needs it. 💙

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#LynchSyndromeAwarenessDay #KnowYourRisk #LivingWithLynch #IamAliveandKickn

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💙 I didn't find out about Lynch syndrome by accident. It runs in my family and that conversation changed my life.

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If you have a family history of colorectal, endometrial, or other cancers, please talk to your doctor about genetic testing. Ask the questions at the dinner table. It might feel awkward. Ask anyway.

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March 22 is Lynch Syndrome Awareness Day. Start the conversation. 💬

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#KnowYourRoots #LynchSyndrome #FamilyHealth #LivingWithLynch #IamAliveandKickn

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🧬 When I was diagnosed with Lynch syndrome, I learned that my body carries a mutation in a DNA repair gene. For me it's [MLH1 / MSH2 / MSH6 / PMS2 / EPCAM — fill in yours!].

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These genes are supposed to catch and fix DNA errors. When they don't work properly, the risk of certain cancers goes up. But knowing? Knowing lets you do something about it.

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If hereditary cancer runs in your family, ask about genetic testing. Knowledge isn't scary, it's a plan. 💙

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Learn more: aliveandkickn.org

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#Genetics101 #LynchSyndrome #HereditaryCancer #LivingWithLynch #IamAliveandKickn

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Things I wish I had known sooner about Lynch syndrome 👇

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❌ I thought: If no one in my family had cancer, I was probably fine.
✅ Reality: Up to 50% of Lynch syndrome cases happen in people with little or no family cancer history.

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❌ I thought: Lynch syndrome was just a colon cancer thing.
✅ Reality: It raises the risk of endometrial, ovarian, gastric, urinary tract, and other cancers too.

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❌ I thought: Genetic testing was only for sick people.
✅ Reality: It's most powerful BEFORE a diagnosis. It's a prevention tool.

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March 22 is Lynch Syndrome Awareness Day. Share what you know. 💙

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#MythVsFact #LynchSyndrome #GetTested #LivingWithLynch #IamAliveandKickn

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💙 I remember the moment I found out.

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[This is a great place to share 1-2 sentences of your own story.]

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Whatever brought you to this community, a phone call, a test result, a family member's diagnosis, you are not alone. There are thousands of us out here, and we show up for each other.

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March 22 is Lynch Syndrome Awareness Day. Share your story. Someone out there needs to hear it. 💬

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#LynchSyndromeCommunity #YouAreNotAlone #LivingWithLynch #IamAliveandKickn

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If you just found out you have Lynch syndrome, I want to talk to you directly.

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I've been where you are. The overwhelm is real. So is the fear.

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But here's what I know now that I wish I'd known then:

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💙 You are not alone.
💙 This community will show up for you.
💙 With the right care and surveillance, you have more options than you think.

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Find your people at aliveandkickn.org. We've got you. 💙

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#NewlyDiagnosed #LynchSyndrome #YouveGotThis #LivingWithLynch #IamAliveandKickn

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One of the hardest things about Lynch syndrome is that it has no symptoms of its own. You can carry this gene mutation and feel completely fine.

That's why I get screened regularly. That's why I talk about it. That's why awareness matters.

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🔹 Changes in bowel habits
🔹 Blood in stool or urine
🔹 Unexplained weight loss
🔹 Persistent abdominal pain
🔹 Irregular or heavy uterine bleeding

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If any of these sound familiar, or cancer runs in your family, please ask your doctor about genetic testing. 💙

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#EarlyDetectionSavesLives #LynchSyndrome #KnowYourBody #LivingWithLynch #IamAliveandKickn

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I tested positive for a Lynch syndrome gene mutation. I haven't had cancer, and because I know, I'm doing everything I can to keep it that way.

 

The word for people like me is previvor. And while it's not an easy thing to sit with, it is powerful. I have information. I have a plan. I have a community.

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If you're a previvor too, I see you. March 22 is our day as much as anyone's. 💙

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#Previvor #LynchSyndrome #KnowYourRisk #LivingWithLynch #IamAliveandKickn

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📅 Lynch Syndrome Awareness Day is almost here: March 22!

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Here's how I'm showing up this year. Will you join me?

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💙 Wearing blue and posting a photo
💙 Sharing my story with people who don't know it yet
💙 Talking to a family member about our health history
💙 Encouraging someone I love to ask their doctor about genetic testing

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If Lynch syndrome has touched your life, your voice matters more than you know. Let's use it.

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Find shareable graphics and resources at aliveandkickn.org/social-media-toolkit

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#LynchSyndromeAwarenessDay #TakeAction #LivingWithLynch #IamAliveandKickn

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On Lynch Syndrome Awareness Day (March 22nd)

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💙 Today is Lynch Syndrome Awareness Day, and I'm not staying quiet.

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1 in 279 people have Lynch syndrome. 95% don't know yet.

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I'm sharing this because someone shared it with me once, and it changed everything. Please pass it on. You never know whose life you might change today. 💙

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#LynchSyndromeAwarenessDay #LivingWithLynch #IamAliveandKickn #KnowYourRisk

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It's Lynch Syndrome Awareness Day and I'm wearing blue! 💙

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[Share your photo here!]

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This community, survivors, previvors, caregivers, family members, advocates, shows up every single day. Today we show up loud and proud.

 

Tag someone who should know about Lynch syndrome. Use #IamAliveandKickn and #LynchSyndromeAwarenessDay and let's fill the feed with blue. 💙

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#WearBlue #LivingWithLynch #HereditaryCancerAwareness

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Today I want to say thank you to everyone who has shown up for me.

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The person who drove me to appointments. Who researched alongside me. Who sat in the waiting room without being asked. Who got tested too, just to know.

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Lynch syndrome doesn't just affect one person. It touches everyone who loves them. If you're a caregiver or supporter of someone in the Lynch community, today is for you too. Thank you. 💙

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#Caregivers #LynchSyndrome #LynchSyndromeAwarenessDay #LivingWithLynch #IamAliveandKickn

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I didn't ask for a Lynch syndrome diagnosis. But I chose what to do with it.

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I chose to talk about it. To share my story. To make sure the people I love know their risk. To be part of a community that refuses to stay silent.

If you're living with Lynch syndrome, your story has power. You don't have to share everything, but sharing anything can change someone's life.

Happy Lynch Syndrome Awareness Day to my fellow advocates. 💙

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#LynchSyndromeAdvocacy #PatientAdvocate #LynchSyndromeAwarenessDay #LivingWithLynch #IamAliveandKickn

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Lynch Syndrome Awareness Day is coming to a close, but my commitment to this community doesn't.

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Every conversation matters. Every shared post matters. Every person who finally gets tested because they saw something on their feed, that matters more than I can say.

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Thank you for being part of this. See you tomorrow. 💙

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#LynchSyndrome #LivingWithLynch #IamAliveandKickn #EveryDayMatters