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  • What is Lynch syndrome

    • What is Lynch syndrome?
    • What causes Lynch syndrome?
    • What are the signs of LS?
    • How is LS diagnosed?
    • How is LS inherited?
    • What are the estimated cancer risks?
    • What are the cancer screening options?
    • Questions to ask the health care team
    • Additional Resources
  • Advocacy and Support

    • The HEROIC Patient Registry
    • Peer to Peer Support with Imerman Angels
    • AliveAndKickn Merch
    • Living with Lynch Stories
    • Share your Story
    • LS social media toolkit
    • 2022 Patient Community Discussions
  • Fundraising

    • Lynch Syndrome Research Accelerator
    • #RidingforLynchSyndrome
  • Resources

    • How do I know if I have a LS mutation?
    • Guidelines on Evaluation and Management
    • Clinwiki for Lynch syndrome
    • Educational Resources
    • MSI-H & MisMatch Repair Deficiency
    • The HEROIC Registry
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    a lynch syndrome hereditary cancer advocacy organization

    what is

    lynch syndrome

    Lynch syndrome is a genetic condition that increases a person's risk for certain cancers. It is the most common inherited cause of colorectal and endometrial cancers. Many individuals with a Lynch mutation develop related cancers at very early ages, much younger than the general population. Screening should begin earlier for patients with a known Lynch mutation. 

    LEARN MORE
     

    mission

    To improve the lives of individuals and families affected by Lynch syndrome and associated cancers through research, education and screening.

    50%

    chance of inheriting a Lynch mutation from a parent

    1 in 279

    individuals are lynch+

    95%

    of them do not know it

    knowing your family history is the first step

    advocacy and resources

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    Learn more livingwithlynch.org

    blog

    Blue Genes Bash NYC 2021
    • Oct 25, 2021
    • 1 min

    Blue Genes Bash NYC 2021

    AliveAndKickn Initiates use of GeneFAX™ to Enhance Education for the Lynch Syndrome Community
    • Oct 26, 2020
    • 2 min

    AliveAndKickn Initiates use of GeneFAX™ to Enhance Education for the Lynch Syndrome Community

    Living with Lynch 2020 virtual patient workshop
    • Aug 19, 2020
    • 1 min

    Living with Lynch 2020 virtual patient workshop

    AliveAndKickn masks
    • Jul 13, 2020
    • 1 min

    AliveAndKickn masks

    Introducing Clinwiki for Lynch syndrome
    • Jun 3, 2020
    • 2 min

    Introducing Clinwiki for Lynch syndrome

    AliveAndKickn and the Colon Cancer Coalition look to empower patients LIVING WITH LYNCH
    • Mar 25, 2020
    • 1 min

    AliveAndKickn and the Colon Cancer Coalition look to empower patients LIVING WITH LYNCH

    Peer to Peer Support

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