a lynch syndrome hereditary cancer advocacy organization
what is
lynch syndrome
Lynch syndrome is a genetic condition that increases a person's risk for certain cancers. It is the most common inherited cause of colorectal and endometrial cancers. Many individuals with a Lynch mutation develop related cancers at very early ages, much younger than the general population. Screening should begin earlier for patients with a known Lynch mutation.
the heroic registry
The HEROIC Registry is the first of it's kind patient-centric genetic database that will enable patients to take an active role in furthering research into Lynch Syndrome genetic mutations.
50%
chance of inheriting a Lynch mutation from a parent
1 in 279
individuals are lynch+
95%
of them do not know it
knowing your family history is the first step
To improve the lives of individuals and families affected by Lynch syndrome and associated cancers through research, education and screening.
mission
advocacy and support
living with lynch
