message from the founder
co-founder & 3-time Lynch cancer survivor
My genes don’t define me. I am AliveAndKickn. Pretty bold statement. AliveAndKickn is more than just a name. It’s a way of life. I joke that Lynch syndrome is the genetic predisposition to colon cancer, endometrial cancer, other cancers…and soccer. But that’s just me. Besides half a dozen surgeries since 1997, I have and still play the game I love. You may find your own game, or hobby, or solace in something that can help you in your day. Lynch Syndrome, other hereditary cancers, even other disorders are difficult to absorb and overcome. We’re here for you. We are looking to make a difference for you and others, both current and future with hereditary cancer. Part of that is helping you navigate the system, offer insights into options, share a smile, look for research trials, but most importantly, aggregate pertinent data to research potential cures.
Genetics is taking huge strides almost every day. Precision medicine, immunotherapy and gene sequencing are the future. We thank you for being a part of our lives. I’m humbled to be part of yours. Be resilient. Be AliveAndKickn!
board of directors
founder and three-time cancer survivor and Lynch patient
Lynch syndrome individual and patient advocate
Executive Director and co-founder at AliveAndKickn
medical advisory board
Abraham Chachoua, MD
Jay and Isabel Fine Professor of Oncology, Department of Medicine, Professor, Department of Urology, Assoc Dir Cancer Services Perlmutter Cancer Center, NYU Langone Medical Center
Ora K. Gordon, MD
Director of Medical Genetics and Integrative Medicine at the Roy and Patricia Disney Cancer Center, Providence Medical Institute, Associate Professor of Medicine at the UCLA David Geffen School of Medicine
Professor of Medicine, Associate Director of The Dr. Henry D. Janowitz Division of Gastroenterology, and Director of the GI Fellowship Program at Mount Sinai School of Medicine.