The one-of-a-kind resource at LivingWithLynch.org offers voices of hope in the face of a Lynch syndrome diagnosis.
AliveAndKickn and the Colon Cancer Coalition are pleased to launch “LIVING WITH LYNCH,” a collaboration with the goal to educate the one in 279 Americans who live with Lynch syndrome - including the 95% of those who don’t know they have it. This resource is launching in advance of LYNCH SYNDROME AWARENESS DAY, Sunday, March 22, 2020.
In November 2019, 13 Lynch-positive patients, seven women and six men, eight cancer survivors and five previvors, met for the first time in Houston at a weekend sponsored by Promega Corporation. While together they had the opportunity to talk with experts in the field of genetic counseling, oncology, research, treatment, and immunotherapy. They were also given the opportunity to connect with each other and bond over shared experiences.
The experience is captured at LivingWithLynch.org. The microsite features videos and photos of patients sharing how their Lynch syndrome diagnosis impacts them, their family, and their outlook on the future. AliveAndKickn and the Colon Cancer Coalition hope to help patients Living with Lynch make informed decisions about health and provide a community to relate to as they navigate future health needs.